Submission: Statutory review of the data availability and transparency act 2022 

AAMRI and its members welcome the opportunity to provide input into the statutory review of the Data Availability and Transparency Act 2022 (DAT Act).  

AAMRI’s members are not currently eligible to participate in the DATA Scheme (the scheme implemented under the Act) so our response:  

• seeks the extension of the DAT Act to include research organisations, including medical research institutes 
• highlights the benefits of including medical research institutes 
• notes some of the challenges that medical research institutes currently face in accessing Commonwealth datasets that could be mitigated by the expansion of the DAT Act 
• covers some observations on the current operation of the DAT Act. 

See below for the full submission, which includes a case study on Murdoch Children’s Research Institute’s GenV project.